Following a period of remission, receiving a diagnosis of relapse can be difficult. Some people may feel like this is a second emotional blow and may experience a range of emotions during this time.

There is always support available—and like with your initial diagnosis, it is important to move forward together with your family, friends and healthcare team. Read more about finding routines following diagnosis here.
 

I’ve received an AML relapse diagnosis: 

• Below are some tips for people living with AML relapse:
  • Try to have your questions answered before leaving the hospital, and make sure you know exactly what your next steps are, whether these are more tests, further treatment, or palliative care. If you would prefer to have all the information from your consultation in writing, you can request it from your haematologist.
  • If you feel overwhelmed or have further questions after meeting with your doctor, write down the list of questions you have and bring it along during your next consultation to have your questions answered.
  • Remember to speak to your healthcare team about the additional support services available, such as counselling and any support groups specific for those who are experiencing relapse.
  • Talking about your thoughts and feelings, whether with your family, your doctor or medical social workers, can help bring things into perspective and help you cope better with your situation.
  • Practising mindfulness and breathing exercises can help relieve any stress, allowing you to come to terms with diagnosis and address your emotions.
  • Continue to connect back with your daily routines or enjoy activities, as much as you can, and pace yourself in this journey.

My loved one has received an AML relapse diagnosis:

• Below are some tips for family and loved ones:
  • It is important to note that almost every support service available for your loved one, is also available for you. Ensure you take the time to speak with your loved one’s healthcare team to understand what is available within your hospital, community and online. Your loved one’s doctor can refer you to a medical social worker for caregiver support, if necessary.
  • When you can, try to be present to help your loved one come to terms with their diagnosis and, if they need you to, accompany them to the hospital/appointments.
  • Encourage them to talk about what they are going through but respect their decision if they do not feel like sharing.
  • Try to find shared goals with your loved one, such as joining them in daily exercises or other activities.
  • It is important that you take care of yourself—take time to relax, connect back with your daily routine, engage in a hobby or visit your friends.