A little about us and our mission
'Live with AML' is a website for people whose lives have been impacted by Acute Myeloid Leukaemia (also known as AML).
Our mission is to provide and find dedicated practical information and support for those currently living with AML, their friends, family and loved ones.
This website has been developed and funded by Astellas in conjunction with leading nurses and patient organisations in the Malaysia, Singapore,UK, and Ireland, as well as people living with AML.
Astellas, is a pharmaceutical company dedicated to improving the health of people through innovation. We have dedicated teams of scientists to develop medicines and we also focus on activities working alongside doctors and patients, to better understand their experiences and help share information and support.
Who do we work with?
An external panel, patient organisations and people living with AML were convened by Astellas to provide input into the content on the site, ensuring it’s scientifically accurate and as practical as possible for those affected by AML.
The panel comprised of four oncology nurses, all of which received honorariums from Astellas for their services:
Alex Drewry
Nottingham University Hospitals
Caroline Kerr
Belfast Trust
Joy Lewis
St. Vincent’s University Hospital
Karen Maloney
University Hospital Galway
Patient group involvement
National Cancer Society Malaysia
The National Cancer Society of Malaysia (Persatuan Kanser Kebangsaan Malaysia), (NCSM), is the first not-for-profit cancer organisation in Malaysia that provides education, care and support services for people affected by cancer and the general public. Visit https://cancer.org.my/ for more information on NCSM services. You may contact us at 1-800-88-1000 or write to help@cancer.org.my for further support. NCSM has provided permission to direct you to their materials. NCSM has helped to review the website and provided advice on content.
Majlis Kanser Negara
MAKNA (Majlis Kanser Nasional) or National Cancer Council of Malaysia is a not-for-profit social enterprise founded by Dato’ Mohd Farid Ariffin. MAKNA provide curative, preventive, research and support services to cancer patients, their families, high-risk groups and general public in Malaysia. MAKNA pool and utilize all efforts, expertise and finance of all sectors of the society to fight cancer and reduce related pain, morbidity and the suffering that cancer patients undergo. Visit https://makna.org.my/ for more information on MAKNA services. You may contact us at 1-800-88-62562 or write to makna@makna.org.my for further support. MAKNA has helped to review the website and provided advice on content.
People living with AML who have shared their story and insights for the benefit of others, and ensured the sites authenticity and relevance:
Alisdair
Jane
Josh
Website created and funded by Astellas. Developed and reviewed in close collaboration with healthcare professionals and AML patient organisations.
Caring for someone living with AML
Caring for someone with Acute Myeloid Leukaemia, or AML, can be physically and emotionally challenging. Support for cancer patient and their families is available, but it can be hard to know where to start. Contact us for more information.
MAT-MY-NON-2023-00019 | Dec 2023